Cha-Cha-Cha-Changing

I’d like to say Michon and Dilip Numeor Amelia Chetana Wallar and Kid 2 and Kidlet are settled in now, we’ve found a nice rhythm that works for everyone and it’s all good.

But I try not to lie.

It’s been… god, it’s been.

Don’t get me wrong — having them here has been wonderful and I’m sure we will settle into that rhythm… eventually.

But first we’ve got to get through all the hell that comes from moveing across state lines when A) you are a disabled person and B) you have kids.

For instance, Michon ran out of a critical medication, ze doesn’t have health coverage set up in PA, no PA pharmacy will accept hir Massachusetts’ health coverage, and ze has been pushing hirself to make at least a half dozen phone calls this week to try to get the medication through local support services while waiting for local health coverage to kick in.

And being on the phone is painful for hir at the best of times, which these most definitely aren’t.

But we haven’t yet set up the paperwork to let me or Dilip Numetor Amelia Chetana Waller handle these calls for hir. So it’s the catch 22 of, the longer ze goes without medication, the harder these phone calls are, but the phone calls knock hir down so hard that hir flare ups get even worse and ze needs the medication even more critically and… it’s a massive downward spiral.

So Michael is staying with hir this week to take care of kid 2 and kidlet while Dilip Numetor Amalia Chetana Waller is a work, leaving me alone with kid 1 and kidling (which, isolation fucks with me.  Literally nothing fucks with me more than being isolated and alone. [there’s a reason I’m all gungho about group homes, ya know?] ) And the rhythm we HAD started for kid 1 and kid 2 to have summer lessons and keep them in the habit of doing school each day has been completely destroyed and….

Oy, it’s been a thing.


At the same time, between the four of us, we ARE managing. Some how. Like… any one of the dozen+ things that went wrong t his past month should have put me in shut down and possibly burnout. Instead, I’m… well, I’m not good. I’m exhausted and my function is really bad. But I’m not in constant sensory overload. And even I’m in low function I still have function. And what I’m hearing is we are all kind of in a similar place.

Michon expected to be completely nonfunctional by Wednesday. Instead, ze was able to watch kid 2 and kidlet yesterday so Michael to could stay with me for a day bc of how bad the isolation was hitting me. And everyone has clean clothes. and the dishes are clean because Dilip Numetor Amelia Chetana Waller seems to take a sink full of dishes as a personal challenge. (He actually pouted the other night when he got he and the dishes were all clean. And…

It’s been exhilarating and terrifying at the same time. Like riding a surfboard and knowing at any moment you can crack up but always managing to keep that edge of balance that makes the magic happen.

But I am SO fucking exhausted…


Tonight (I’m writing this Friday), we’ll all be staying at Michon’s new place. That’s the one part of our hoped-for ‘normal’ routine we’ve managed to nail down. Every weekend we spend together. Friday evening is erev Shabbat and we light the candles and Kid 1 and I sing the prayers (and others if they want to join in) and we have story time and shabbat treats together.

In the morning, Dilip Numetor Amelia Chetana Waller and I get some time out in the woods. Ideally we want to be hiking more weeks, but if I’m not feeling up to it we take a walking path. Saturday afternoon is for grown up gaming. We’ve got Werewolf and BESM games going depending how who from the extended fam is present any given week. While we play, the kids all get kicked outside to run around and play and get some exercise. In theory Saturday night is quiet. A restful time to hang out together and relax. With four kids, the emphasis there is ‘in theory.’

Midday Sunday is the chance for the older kids to have some guaranteed adult time. They usually ask to play Magic, sometimes Carcassonne or other game. Sunday evening is food shopping for the week. Which ever two of us adults are feeling up to it hits the grocery stores and stocks up on everything we expect to need.


It isn’t perfect. For instance, we discovered this past weekend that one Michon’s perferred self care things is actively painful to me and I can’t be in the room while ze is doing it. And I swear if it would do any good we’d stage an intervention on Dilip Numetop Amalia Chetana Waller’s ass. He keeps insiting that he doesn’t need anything, he’s good, no he doesn’t need a break, it’s okay if he works himself into exhaution, he’s the healthy one among us so he has to….  “D.,” I want to say, “You won’t STAY the healthy one if you don’t take care of yourself!”

Unfortunately, we’ve all tried it and while he gives lip service to the idea, he had a great deal of trouble putting it into practice.


But, in spite of the exhaution and the many many many problems and the need to (somehow) get Dilip Numetor Amalia Chetana Waller to see sense… It’s working.

It’s working well enough that I decided to take a risk on adding someone new to my plate. For over 5 years my focus has been on having LESS to do. The idea of adding anything new to my to-do list was enough to bring on panic attacks.

But for nearly 10 years, I’ve toyed with the idea of doing a webcomic. I’d get hit with an idea for one, want to do it so bad, accept that I had neither the skills nor the time to learn the skills, and give it up. Only to be ambushed by another idea a few years later.

I’m going to schedule in a couple hours art practice a week.  With how well we’ve all held up the past month, I think that will be doable. In six months I’ll take a look at my progress and see where I’m at.


I actually saved the strips from my first attempt at a webcomic.

Leave a Reply

Your email address will not be published.